November 10, 2021
Ardea presents “Beyond Patient Journals - Using Goal Attainment Scaling to Capture the Patient Voice in Developmental Epileptic Encephalopathies
Ardea's CEO, Chere Chapman participated in the DEE-P Connections workshop focused on the topic of "Assessing Status and Opportunities for Developing Outcome Measures for the Most Severely Affected Populations"
Speakers
- Gabi Conecker, Co-Founder of the International SCN8A Alliance and DEE-P Connections,
- Terry Jo Bichell, Founder and Director of COMBINEDBrain
- Chere Chapman, CEO Ardea Outcomes
- Rehabilitation model for severe neurological impacts/adaptation to severe DEEs presented by Kennedy Krieger
- Research on DEE Outcomes by Anne Berg
- Telethon Kids work on DEE Outcomes presented by Jenny Downs