April 17, 2023
Presentation: Qualitative methods identify functional abilities goals for children with SCN2A Associated Developmental and Epileptic Encephalopathy
The presentation highlighted the use of Goal Attainment Scaling (GAS) to capture meaningful changes
Our CEO, Chere Chapman, participated in the symposium, Capturing Inchstones: Novel Approaches to Measurement for Severely Affected Children With SCN2A-Associated Developmental and Epileptic Encephalopathy, at the 55th annual Gatlinburg Conference. The presentation highlighted qualitative approaches, including Goal Attainment Scaling (GAS), to understand what’s important to families and how they define meaningful change.